Disney magic and the magic of FORCE all in one day
Taking a break in between activities at the FORCE conference. Time to put some thoughts down on paper. It’s been an inspiring experience with a bit of sadness too. There are 500 people here—some are healthcare providers but most of the 500 are women with a BRCA mutation or women who are at risk for hereditary breast and ovarian cancer. It’s unbelievable to hear everyone’s stories, their lives and their histories.
Last night, I met two women in their 20s here with their mother. Both women found out this past January that they carry the BRCA mutation. Now they are exploring surgery options. I can’t help but think of my own daughter when I look at these two young women and wonder where we’ll be in 15 years. I admire these women for their energy, spirit and acceptance of the genetic mutation. And I’m guessing that FORCE is helping them realize they are not alone and they do have options. That is the truly magical part of FORCE. There are so many women who’ve walked incredibly journeys— losing parents, grandmothers and siblings to cancer. And taking preventative measures like prophylactic surgeries so that they will be able to see their own children grow up.
I spent a little time walking around downtown Disney, humming to the tunes and watching families enjoy Disney. It was nice to leave the hotel for a bit to have some time to think and regroup. There’s no place like Disney to help you clear your head.
After my walk, I checked out the exhibit hall. There are wonderful speakers and exhibitors here sharing their knowledge and advice to show women they have options. Yesterday I had lunch with Informed Medical decisions, a company that provides genetic counseling over the phone. What a great resource if you live in a area that doesn’t have a genetics counselor or if your genetics counselor is booked for several months.
I also had the opportunity to meet a really energetic woman with da Vinci Surgery. That’s the name of the robot they used for my hysterectomy and oophrectomy. Quite honestly, I didn’t know much about how the machine worked.
And how about this research study on whether or not exercise can reduce your breast cancer risk. If you’re high risk and under 40, you can qualify. And you get a free treadmill out of the deal. The study is coming out of the University of Pennsylvania and I met the researcher behind it who inspired me to go hop on the treadmill for a little afternoon exercise. So now I’m off to find some dinner. And later to the show and tell room where I get to share my breasts with lots of other women. More tomorrow!
Posted on May 15, 2009, in brca, breast cancer, FORCE and tagged brca, breast cancer survivor, Disney, FORCE conference. Bookmark the permalink. Leave a comment.
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