Category Archives: Susan G. Komen

Blisters are healed. Time to start thinking about 2010 3-Day.

Since we got back from the walk, I’ve had lots of people tell me they are walking 2010 and our team is up to 5 members in the past week.  I love my friend Pam’s post “Why you should seriously consider walking the 3-Day”.  She does such a great job of summing it up and I couldn’t agree more.  Pam and I met when she was diagnosed with breast cancer 6 months after me.  We’ve been friends ever since and although we don’t see each other often; the breast cancer bond has formed a unique friendship.  Our other breast cancer friend, Missy is also part of Pam’s team.  In Pam’s blog, she mentions that Nancy’s Naughty Nockers (NNN) now changed to No More Naughty Nockers has raised over $200,000 in three years—that’s a ton of money in this fight.  I am also proud to say that Ta Ta Breast Cancer has raised $160,000 in two years.

In 2010, we’ve formed another goal.  NNN and Ta Ta Breast Cancer, while remaining separate teams, are forming a bit of strategic alliance orchestrated by Pam’s husband Bill and me.  We’ve decided that the two teams together are going to raise $250,000 in 2010.  We’ll support and help promote each other’s fundraisers.  So come on, enough waiting, join the 3-Day and let’s start working towards this unbelievable goal.  If you join now, you can save $35 by entering POWER10 in the coupon code area.  We can’t wait to see you at the 2010 walk.

Pam, Missy, Ellyn 2009 3-Day

Pam, Missy, Ellyn 2009 3-Day

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The 2009 Michigan Breast Cancer 3-Day is over. The memories will last forever.

 Just settled in with a cup of coffee and an hour to gather my thoughts about the past weekend—my 2nd Breast Cancer 3-Day. It’s hard to put into words the thoughts and emotions of the past weekend. It’s so much more than 60 miles. It’s about celebrating survivorship and remembering the women and men we’ve lost to breast cancer. It’s about raising awareness of the harshness and the reality of this disease. It’s about raising money so we can continue to crush breast cancer. It’s all that and more. Lifechanging may be the only way to describe the experience.
 
I walked with 24 other amazing women of Ta Ta Breast Cancer—I met 5 of them for the first time on Friday morning.DSC_3213

 

Others, I met during training walks. Some were acquaintances prior to the walk. And some others are the people nearest and dearest to me—my mom, my aunt, my sister-in-law and some of my best and oldest friends. Sharing this experience together takes all of these relationships to a much deeper level.

If you have ever thought of walking the Breast Cancer 3-Day (now called the Susan G. Komen 3-Day for the cure) but just didn’t think you could do it, trust me, you can. If you live in Michigan, join us next year. If you are in another state, grab some friends and don’t wait another day to sign up. If you can’t walk, crew or volunteer. You will thank me later.

We have to do this for so many reasons. But I think 5-year old Samantha Dubin summed it up so well when she returned from a cheering section and said to her brother Josh.

 “The women are walking now, so they will save my boobs later.”

Day 1 at the Susan G. Komen Advocate in Science Training

I just wrapped up an intense day of training with Susan G. Komen as an Advocate in Science.  I have pages and pages of Susan G. KomenPowerPoint presentations with notes scribbled all over the pages.  For most of the 10 hour day, my eyes were glued to the podium and the PowerPoint showing me what’s happening in breast cancer research.   I sat with 50 other people and had the absolute pleasure of listening to leading researchers who are making a difference in this disease.   I’m certain many people are wondering what it means to be an Advocate in Science (I wondered that too yesterday).

By presentation #2, I had my answer.  Komen’s strategic focus is to reduce incidence and mortality of breast cancer within the decade.  And all research grant requests will have to line up with this strategic focus.  As Advocates in Science, we have the unique opportunity to help review them—not as scientists, medical professionals or researchers, but as breast cancer advocates and survivors.  Pretty darn cool.  I will share a couple nuggets of information that may help clarify my passion for raising money.

  • The first researcher talked about her discovery of Molecular Breast Imaging. mammogramSusan G. Komen took a chance on her and gave her funding to move this forward.  Seems that MBI is a very useful tool in detecting breast cancer–far better than Mammograms which BTW completely missed my breast cancer and far less expensive than MRIs.  Not to mention, while the MBI looks similar to a Mammogram machine, there is no need to press your breast into a complete pancake to get the image.
  • This evenings presenter has a Promise Grant—a multi-year, multi-disciplinary grant to the tune of 7.5 million dollars to study the deadliest form of breast cancer—Inflammatory Breast Cancer (IBC). This is huge and much needed research.  Many IBCs go misdiagnosed before it’s too late.  They present themselves in so many ways and look much like a breast infection.  Once discovered, they are difficult to treat often because they have metastasized.

These are just two of so many ways Susan G. Komen is impacting research.  So if there is any doubt in your mind where your donation goes, trust me when I say it’s making a difference.   Last year Susan G. Komen spent $100 million dollars on research. That’s a lot of money focused on saving lives.

Oh so fun…Now I really get to help cure breast cancer

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I just got accepted to the Susan G. Komen Advocates in Science Program. I’m not exactly sure what’s involved but their goals for the program are pretty simple and well defined:

“to ensure that a strong, well informed advocate’s perspective is integrated into scientific dialogue, as well as the policy and funding decisions impacting our progress toward discovering and delivering the cures.”

I’m excited and honored to be part of this program. More importantly, I can now truly have an impact on the future of breast cancer beyond fundraising, beyond mentoring and beyond raising awareness.

Can’t wait to get started.

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